Welcome to Cystic Fibrosis Canada's Patient Registry.
The Canadian Cystic Fibrosis Registry is a national resource comprising clinical data on the Canadian CF population. First created in the early 1970s, the Registry was established to support the CF research and clinical community in their knowledge of disease patterns and care of patients with cystic fibrosis.
The Registry is a powerful research tool used to monitor important epidemiological trends that help guide the direction of research and clinical care – with the goal of improving the quality and length of life of people with cystic fibrosis.
The Registry is also used for educational purposes. The summary statistics help to graphically show clinical outcomes over time. These visuals are presented to the public, medical and allied healthcare professionals, and many other groups to share and increase the knowledge about this disease in Canada.